For those who didn’t live through the worst years of the AIDS epidemic it is be hard to understand the complexities of survival. It doesn’t seem logical that the realization that you going to live can cause more upheavals than learning you are going to die. It doesn’t make sense unless you lived through it. Writer, activist and survivor Leslie L. Smith (Sally Field Can Play The Transexual) writes about this conundrum a moving piece published on his blog. Why A.S.S. Is About So Much More That Just Survivor’s Guilt.
It was unimaginably awful, that moment when I realized my crippling depression was due to the fact that I had a long and healthy life ahead of me. I had spent my life living in acceptance of HIV’s terminal effect on life. I had held that foremost truth in all my life choices. But the rules had changed. I had to live. At least that’s how it felt to me. I had to live a long life. Not I get to, not I want to. I had to.
Please Read The Rest Here: http://www.leslielsmith.com/blog/2015/2/15/why-ass-is-so-much-more-that-survivors-guilt.
It is a profound piece. Thank you Leslie. If you are not regular readers of his wise and wonderful blog please check it out at http://www.lesliesmith.com. You’ll be glad you did.
Research Exploring The Complexities of Survival
This time last year Let’s Kick ASS conducted an online survey of 218 individuals. 92% of you expressed an interest in being contacted for future research opportunities. Let’s Kick ASS is partnering with academics and researchers interested in look more closely at AIDS survivor syndrome and aspects of survival.
The first of those projects is actively recruiting now.
Let’s Kick ASS has been working with Redge Norton, a Master’s of Social Work candidate, whose conducting one-on-one interviews on the coping mechanisms used (or abandoned) by long-term AIDS survivors diagnosed between 1980 to 1996.
These interviews will last approximately 30 to 60 minutes in length and will take place at the offices of Shanti, Let’s Kick ASS or another agreed upon location that supports confidentiality. In addition, there might be a 15 minute telephone follow up call if Redge Norton needs to clarify anything you might have said during the interview. Only unique identifiers, not actual names, will be attached to the interviews.
If you would like to participate in this research project or any of the other planned research projects please email LKAResearchProject@gmail.com. Please include your name, mailing address and phone number and we’ll put your name research list.
If you have questions or would like to contact Redge directly, you can contact Redge Norton directly at Rnorton5@horizon.csueastbay.edu or by calling 415-794-6723.